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Crown Point boy battles rare disease

Family organizes runners to raise awareness

Dmitri Duval, a 7 year old Crown Point boy, suffers from Juvenile Dermatomyositis, an auto immune disease that attacks skin and muscles. It is  potentially life threatening, affecting only 2 in a million children.

Dmitri Duval, a 7 year old Crown Point boy, suffers from Juvenile Dermatomyositis, an auto immune disease that attacks skin and muscles. It is potentially life threatening, affecting only 2 in a million children.

— To raise awareness about Juvenile Dermatomyositis, the Duvals gathered a team to run in the Biggest Loser Half Marathon and 5K road races in Plattsburgh this spring. They raised more than $1,500 for the Juvenile Dermatomyositis Foundation.

Taking part in the half marathon were Erin Duval, Kyle Dinsmore, Christina McDonough Slattery, Maria Ann MacKay, Michele Leroux and Angele Vanderlaan-Leroux. Running the 5K were Ann Marie Galvin, Delaina Dinsmore, Todd Condon, Tonya Whitford Condon, Erin Burroughs, Ginny Crowfoot, Chris Crowfoot and Rebecca Granger Moore. Running the mile children’s run were Dmitri Duval, Riley Dinsmore and Bailey Dinsmore.

“We decided to do the Biggest Loser run because we were unable to attended the annual conference (in Chicago) for JM this year,” Erin said. “I had already committed to run the half (marathon) so I felt I still needed to do this, even though it wouldn’t be in Chicago with the rest of the JDM families. Initially it was my brother and I who were going to run. When realized the trip was no longer an option we decided to create a team here. The goal in Chicago was to raise awareness, so we needed more people here if we were going to be noticed.”

More information on Juvenile Dermatomyositis is available online at www.cureJM.org. Dmitri also has a Facebook page called Dmitri’s mission with information.

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