Thanks for support

To the Editor:

The ALS Raising Hope Foundation would like to thank all those who contributed to our fund raiser for ALS research at Harmony Golf Course this summer. Each and every donor is highly valued and together you helped us realize $40,000 for MGH, (which was doubled by a matching donor), and $7500 for ALS TDI. The generosity and good will that has been extended to all of us in the ALS trenches has been overwhelming. Please know that the ALS patients, their families, and caregivers find comfort and strength in your support. This neurodegenerative disease has claimed more than 38 local people that we have been able to identify, and shows no signs of stopping. Finding a cure through research is critical and we thank you for joining us to be part of that cure.

We also wish to thank those who continue to send in contributions as they are able. We forward these donations as quickly as possible as there are trials and potential therapies in the ALS pipeline that MGH and ALS TDI find very promising that need funding. They have sincerely appreciated your donations, (you have placed us as one of the top small donors of ALS research at MGH). At MGH, your money will be used to launch new trials using MRI and PET scans to better understand and diagnose ALS; to support research using blood and cerebrospinal fluid to discover and validate biomarkers in ALS, (this may lead to answers for the causes of ALS); and to support a study using stem cell technology that holds exciting prospects.

And finally, a thank you to those of you who have contacted us with your ideas and plans of donations for the next round of golf and an auction on July 28, 2012 at Harmony Golf Course in Port Kent. This advance notice is greatly appreciated and a huge help with planning. Together we are all making a difference.

Roger and Darlene Long

ALS Raising HOPE Foundation


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