"She would experience chest PT, nebulized antibiotics, enzyme capsules every time she eats to deal with digestive symptoms and the possibility of frequent two-week tune ups in the hospital to clear any lingering infections in her lungs caused by the sticky mucous. All of this and still the life expectancy was only to young adulthood. We knew that we could not accept this as fact and decided to do everything we possibly could to change it...
"We decided to raise money to send to the CF Foundation to speed the research process and make the difference for Kayla and all of the other kids with CF in their lifetimes. There are over 100 people with cystic fibrosis in Vermont with at least nine kids in the five-town area. The advances in CF research benefits all C. patients as well as those suffering from other genetic diseases.
"Every breakthrough made in genetic research and therapies for CF is knowledge that can be applied to other genetic diseases. Thanks to the incredible support of the extended community, this event is one of the largest grass roots fund raiser for the CF Foundation. The Stampede includes a craft market and lawn sale, silent auction, bake sale, 5K run, and the walk and roll a thon..."
All money raised by Fire and Ice's special meal program next week, and the Stampede event itself, goes directly to the CF Foundation, All of the people involved with the Bedard family are volunteers; nearly all materials and services are donated.
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is focused on the development of a means to cure and control cystic fibrosis and to improve the quality of life for those with the disease.
Check It Out: To register to eat a delicious benefit meal at Fire and Ice Restaurant in Middlebury during the week of July 5-8-with the restaurant donating 50 percent of your food bill to the CF cure-call 1-800-367-7166 or 388-7166. For information about the CF Three Day Stampede in Bristol, July 23-25, call 453-3952 or 453-4305.