The doctor informed the Tapticks that the life expectancy of a child with CF had grown from where it was even 10 years ago, when those with the disease weren't expected to live past their 20s.
"Now it's in the 30s and it's quickly rising," said Taptick. "I know someone who is 35 living with CF and when he was born, he wasn't supposed to live past 7. That just shows how far we've come."
However, the estimated 30,000 Americans living with CF aren't out of the woods, yet. The disease still complicates the body's ability to absorb fat and causes respiratory problems.
"In the lungs of people with CF, mucus forms making it harder to breathe, and the mucus can cause respiratory infections," explained Taptick. "We've been lucky, though. Brooke's lungs have been clear every time we've checked."
Now 16 months old, Brooke's condition, however, requires her to undergo chest physical therapy twice a day for 25 minutes at a time.
"We cup our hands and hit her chest to pull the mucus off of her lungs," explained Taptick.
Though there are other methods for helping combat the mucus problem, such as expensive high-tech vests, which do the same job and nebulizers to help with breathing, Taptick said she'd like to see more than remedies for the disease. She wants a cure.
That's why Taptick is working with Colours Salon on Main Street in Peru to host "Cuts for a Cure," Sunday, Aug. 22. The event will consist of haircuts by appointment with proceeds to benefit the Cystic Fibrosis Foundation. Appointments may be made by calling the salon at 643-2655.
The day will also consist of raffle prizes and other drawings, as well as a baked goods sale.
Those who miss the event may send donations in care of the Cystic Fibrosis Foundation to Taptick's parents, Mike and Ila Daley, 2 LaFlure Lane, Peru N.Y. 12972.